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12 March 2010 | 19:42 GMT


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Switch to ‘permission to access’ on SCR

Tags: consent   GP   GPs   PCTs   Scotland   SCR   Solution   Summary Care Record   Wales  

07 Aug 2008

Patient information will be uploaded to the Summary Care Record with implied consent and patients will then be able to choose whether to give “permission to access” under the new consent model for the SCR.

Individual GPs will also be given discretion to decide whether the initial upload of information should include only details on patients’ allergies and medications or additional data as well. The details of this are still being discussed with the profession.

The proposals, which were approved by Connecting for Health’s Summary Care Record Advisory Group last month, are currently being discussed with a range of key stakeholders. The revised model will then go forward for approval by CfH’s Care Records Service Programme Board in September.

Dr Gillian Braunold, clinical director for the SCR, told EHI Primary Care that detailed documents on the new model were being prepared.

She added: “In essence the model is implicit consent with ‘consent to view’ which we are calling ‘permission to access’. The first thing that will be uploaded is medications and allergy information but if GPs are comfortable they will be able to send more information on the initial upload although allergies and medication will be the only things to be uploaded automatically.”

Dr Braunold said the details of how this would work were still being discussed with the profession.

The new model will be used for national roll-out of the SCR and Dr Braunold said that, following approval of the model, she would be discussing with the early adopter PCTs how each trust wished to migrate to the revised consent arrangements.

The technical solution for the new model will also have to be developed by GP computer suppliers before it can be used by GP practices.

The existing consent model for the SCR in use by the early adopter PCTs means that, once information had been uploaded on an implied consent basis, patient information can be accessed without the need for further consent. Explicit consent to the SCR is only gained when patients present opportunistically at the surgery.

The model was criticised by University College London’s evaluation report on the SCR which called for an urgent review of the consent model after finding that patients in the early adopter areas remained ignorant of the basic issues despite an extensive public information campaign.

The evaluation team recommended that the SCR Programme Board and Advisory Group should look particularly at the ‘consent to view’ model which is used by both Scotland and Wales and means patients must give their explicit consent to view the record at each encounter.

Links

Implied consent set to be scrapped for SCR

Fiona Barr

© 2008 E-HEALTH-MEDIA LTD. ALL RIGHTS RESERVED.

Reader's Comments
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Reader's Comments

1

risky stuff

stressfreedave@hotmail.com

07 Aug 08 10:08

So, will SUS have to ask for consent to access and share patient identifiable data or is that still to be done with 'implied consent' or is a case of it will be done without consent?

Allowing doctors to decide what should be uploaded is risky to say the least. I have had doctors that think receptionist have a 'need to know' which woman have had abortions with patients not being allowed to say no whilst the one I have now does allow patients to say no.

There will also be a risk of patients getting confused about what may or may not be there. There will be some that do not upload anything without expressed consent whilst others will have a lot of info uploaded. How are patients meant to know what has been uploaded? Would what has been uploaded be a deciding factor on a patient allowing some staff access?


2

What about those who've already 'opted out'?

08 Aug 08 14:08

Step forward CfH with some information please:

What about those patients who have already expressed an 'opt out' and contacted their GP to have the requisite Read Code set in their record to prevent an automatic upload? Will they get an SCR anyway - despite their specific request not to have one?


3

opt out continues

12 Aug 08 17:08

To the last contributor- the system requirements from the GP systems are not changing in ensuring that no record is sent from a clinical record that has the required read code 93C3 ( read code version) entered unless there is a more recent 93C2 been entered. Dr Gillian Braunold Clinical Director SCR

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